Wednesday, October 29, 2008
It's been too long.
Monday, June 2, 2008
When it's not shiny and new.
Eight months ago I was more than ready. I was sick of high blood sugars, waking up at three AM in the hopes of staving off morning highs, correcting all day, lows that I could not predict, and A1c’s that had never been anything lower than 8. I was a little nervous. What if I couldn’t deal with site changes? Bleeders? What would it be like to have such a huge part of this disease in my pocket, instead of stowed away in my purse? Would it be worth it? I wasn’t quite sure, and I’m still not certain that I have all the answers. I know I love the fact that I see good numbers more than bad ones. Going days without a number over 200 isn’t a surprise, it’s the norm. Having A1c’s under 7 make me feel great not only physically, but emotionally. I’ve never been prouder of how much control I can have with disease. It’s almost as if I’m playing a game, except the only person I’m trying to one up is me. A new trick with a meal bolus, lowering my averages, lowering my A1c, basal rate shifts, anything to win this never ending match between myself and this disease. But it can’t always be a game and it’s not always perfect.
There another side to this story.
I find myself holding off on site changes because I don’t want to look for a spot that isn’t scabbed and puffy. I hate the scabs. The patterns are like constellations, but instead of resembling a fearless hunter or a great bear, they just show me what my body isn’t capable of. The pump companies talk about how a pump makes your life easier with Diabetes, but I don’t think this is always true. Before I was on my pump I wondered if it would serve as a constant reminder, and for the first few months it didn’t seem that it would be. Now I know I was wrong. I can’t help but feel self conscious of the tubing, or the little glances someone will make at an infusion set on my arm. I feel different from everyone else. The responsibility makes me feel older and less free. There are even days when I seriously think about taking a break, giving it up. I know I won’t, but sometimes my mind wanders to what it was like when I didn’t pick outfits based on where my infusion set was or make plans based on infusion set changes. Some days are harder than others, but all I need to do is think of that first A1c of 6.8 to remind me that it’s worth it even when it doesn't seem that way.
(I wrote this entire post without knowing that today was the actual eight month anniversary of my pump arriving. Crazy.)
Wednesday, April 9, 2008
What A Wednesday.
Well I woke up and found this:

A knot in my tubing.
Accompanied by a 240mg/dL bloodsugar.
After snapping that picture I started my site change routine:
Put the cartridge in the pump.
While the rod was pulling the cartridge back, I IV prepped my new site and unwrapped the new infusion set. Let dry.
Secured the pump cap over the cartridge.
Screwed the old longer tubing from my last site on to the cartridge. (The set I was putting in had short tubing pre-connected inside the inserter.)
Popped the site in my left hip.
Sting!
I pulled the guide needle out and saw a tiny drop of blood. No problem.

I looked down at the tubing that is pre-connected to the site, it was filling with blood. Almost as if I was having blood drawn at the lab.

I steadied myself (have I mentioned my hatred for bleeding?), and got to work yanking the site out using a warm washcloth.
After I had the site out and stopped the bleeding I put some antibiotic cream and a Sesame Street band aid on it.
Then I started the site change process over again.
The next set seemed fine until a few hours later when my blood sugar was sticking around 250.
Thankfully when I started writing this I clocked in at 100 exactly.
What a day!
Tuesday, March 11, 2008
It's official, I've lost my mind.
Now to the part where I've fallen off my rocker. About an hour ago I was talking to my mom and I said, "So would you think I was crazy if I wanted to put my pump in the bath tub?" She looked at me with that you must be joking face and replied with a yes. I then explained that I just wanted to test it's waterproof-ness. I haven't done it, but I am tempted to. So have I lost it? Fellow pumpers, what do you do in the summer?
Tuesday, January 29, 2008
I don't have a title for this one.
Sometimes I wonder if I’m missing some part of my brain. When it comes to understanding the emotions that others seem to have when it comes to their diabetes, I have trouble “getting it”.
As of today, I’m not sad and I can’t say that I can remember ever being that way. I know I used to be scared, but not of the complications or the future. I was afraid of the shots (when I was very little), blood work, and the way the world would view me as a diabetic. My parents never worried about my future or my lows while I wasn’t in their care (I’ve asked them.) The worst part for my parents was being the ones who had to give me the shots, and the exhausting process I would put them through as I fought them off. My doctors didn’t put a lot of weight into A1c numbers in the beginning. It may be old school thinking, but they realized that anything near “perfect control” wasn’t really possible in a growing child. It was 2 shots a day and couple of glucose tests. There wasn't talk of correction factors, basal, bolus etc. It was simple and no where near perfect. It barely worked. I can’t even remember if I thought “diabetes” was a forever kind of thing. But I’m thankful for those things, because if I had known diabetes was that “bad” I probably would have turned out a lot differently. I now know that without a cure, diabetes means forever. But I’m pretty sure I’d be okay with that. For me it still doesn’t seem that “bad”. I’m confident in my abilities to tweak numbers, know my body’s reactions, sense lows, and care for myself. For right now I’m healthy and relatively happy. Things could be much worse. I could be dying, but I'm not. I'm living. Plus there are people who don’t have the amazing technology of an insulin pump, the insulin for it, or meters that read in 5 seconds. I’m more worried about high school, college, a future career, and if Justin Timberlake will ever know I love him, than I am about my diabetic future. Being a “diabetic” is probably one of the last things on the list that describes me. It’s also one of the last things that has any influence on who I am as a person. Diabetes care is just something I do because I have to. It’s like breathing. I don’t really need to think about it. I just do it. This might change one day, but for now this is how I feel.
These are the cards I’ve been dealt, and I have no other choice but to live well with them.
Wednesday, December 19, 2007
The Computer, License, IHOP, and Early Christmas.
- So everything with the computer seems to be falling into place. They replaced the hard drive for free because it's still under warranty, and it also got upgraded to a 2.5gb one because it's all they had left in the store. Small surprises are always nice. We received the recovery discs yesterday, so they ran those on the new hard drive last night. My mom is picking the computer up today. While all of this is going on my old hard drive is making it's way to Louisville (I think). Where the big repairs or whatever are done. They will attempt to retrieve my files at a fee of somewhere around 200 dollars. They won't do anything until they call us with a cost estimate, just in case it's way more. In the end it will be worth it because I have at least that much invested in iTunes music, plus my pictures and school work are priceless. I'm just glad my parents are willing to pay for it. In the meantime I will at least be able to use the new and improved computer while I wait on my old files. Cross your fingers that there will be no issues with retrieving my files! The next step is either an external hard drive or some other back up method (suggestions are welcome.)
- I have an 8:30 am appointment at the MVA on Friday to take my behind the wheel provisional license test. The only problem is we still haven't heard a thing from the Medical Advisory Board, even though my mom has called almost every day since last Monday. I'll update Friday to let you know how that goes.
- I also have an interesting get together to attend Friday afternoon. The Thanksgiving crew and I are going bowling and to IHOP. This worries me. First of all, I have only been to IHOP twice, and both of these times I was pump less. We are going at 4 in the afternoon, and my basal rates are not set for me eating at that time. I have this weird issue of going high after dinner, but only when dinner is at a normal hour. So I'm concerned that that basal kick up I have around 7pm will send me falling. I guess it's time to figure out a temporary rate. Plus breakfast food is not exactly carb friendly. Sometimes diabetes is so annoying, when all I want to do is have a little teenage fun!
- On Saturday morning my sister and I are heading north for an early Christmas with my mom's side of the family. (My parents are going up Friday after my test, and my sister will be arriving here shortly after they leave.) I'm excited to see if I can pull off another holiday with relatively good numbers. I'm also looking forward to seeing my little cousins who I haven't seen in 2 months.
Monday, December 10, 2007
Whoops.
Oh yeah, I'm proper people sick and it sucks! See ya later alligators.
Tuesday, December 4, 2007
Quick question.
I've been having a boat load of overnight lows so I have been tweaking my basal rates, we'll see what happens. Expect a pump and doctor update Friday.
Monday, November 19, 2007
Pumping at a Party.
This is dress I wore:

I haven't posted my Diabetes 365 pictures in awhile. I'll be back tomorrow with those. In the meantime why don't you check out the pool, there are now over 800 pictures.
Saturday, November 17, 2007
Email the Doctor & A Party!
Tonight, I will be celebrating my best friend's 17th birthday! It makes me feel really old. I know I am only 16 and I am complaining about getting old. Maybe the right word is SCARY. It feels like just yesterday we were carpooling to middle school. Now she can drive, and I am about to get my license. By this time next year we will probably both be thinking about where to go for college. It freaks me out. Oh and this will be the first party that Orin and I will attend wearing a dress. Let's just hope I don't have an experience like Kerri.
Friday, November 2, 2007
Perez has it right!
By the way it's my 1 week Pump-iversary.
Monday, October 29, 2007
Pump Update. Days 14 & 15.
As I was watching TV Sunday morning, a sad melody started to play from the speakers. Then a little boy said, "My mom pricked my finger". A little girl then said, "And it really really hurt". The scene changed and a little boy said, "I am 11 years old, and my mom says I have had over 11,000 shots." I heard these words and realized that I am one of these kids. That those words could easily come from my mouth too. No child should have to say those words or think about things like that.
There is no cure for Type 1 or Type 2 Diabetes.
Yet.
This is our huge bowl of Halloween candy. It has been sitting on our dining room table for a week. As a diabetic, it is not that I can not have candy. I believe you can have anything in moderation. But that is where the problem comes, it is so tempting. I haven't had too much, but I can't wait for the kids to show up and take it away. For me it really is a trick or treat. Trick myself into not wanting it or treat myself with only a piece or two.
There is no cure for Type 1 or Type 2 Diabetes.
Yet.
Saturday, October 27, 2007
Day 13 - LBDB
Since I am now using an insulin pump, my CDE suggested that I carry extra pump supplies. She said to use the at least one of everything rule. At least one infusion set, 1 insulin cartridge, an extra battery, a few syringes, IV prep wipes, and my current vial of insulin (depending on the weather), and extra test strips. Some people have little black dresses, I now have 3 little black diabetes bags.
There is no cure for Type 1 or Type 2 Diabetes.
Yet.
So the party was fine, no lows, no over eating. All though I was tempted by the towers of pizza I stuck to 2 slices and 2 pumpkin cookies that I made with Splenda. Everyone had a good time. Only one person asked about my pump, and she thought it was my iPod. I told her we would talk about what it was some other time. I wasn't super comfortable disclosing my diabetes in a group of people where I only know a few very well. As the only people at the party who know I am diabetic are the girl who asked about it, who also happened to be the host, and her mom. I just find it very annoying to have the diabetes spot light shone on me, and I didn't want to hear any of that "my grandma has diabetes crap". I also think if it had not been my first day on the pump I would have been slightly more comfortable giving that standard, I have type 1 diabetes education session. Pump post and double picture day Monday! Have a great weekend.
Friday, October 26, 2007
Busy Day & Awesome Beth!
Well Beth has done it again. Not only did she start the wonderful Diabetes 365 Project.
She has now created a website for the project!
Happy Friday All!
Thursday, October 25, 2007
Halloween Party! and Day 11

There is no cure for Type 1 or Type 2 Diabetes.
Yet.
Wednesday, October 24, 2007
A Real Post & A Picture.
I have been wearing my Cozmo insulin pump for 3 days now. In that time I have learned a lot of things about myself and my new buddy Orin. While I am only pumping saline as a part of what I guess my endo would call "home training" it still is pretty realistic. I definitely think that being young has it's advantages when it comes to using a pump. For instance if this was my mom pumping she would have to pull her glasses from a top her head squint at the screen, and call me to help her. If it was my dad he wouldn't even try and I would be completely in charge of helping him manage this device. I know these things because my mom can't use the remote to our television, and almost every time my dad tries to print something off of the computer he calls me to help him.
What have I learned? Well for starters, infusion set insertion is not the horror I imagined. I sat in the endo's office clenching my teeth through the training in anticipation of inserting the infusion set. Turns out it's a piece of cake. The office's pump trainer was very impressed that I knew so much about the pump, but I guess that's what happens when you have a lot of time in between receiving it and going to training. It only took about 45 minutes to go over everything. At one point she was asked, "Can I at least peel off the adhesive protector on the set so I can feel like I am doing my job?" What else? Oh my dogs are very intrigued by the sound of a bolus. That click click click, has them both staring at my hip in wonder with their heads cocked to the side. Sleeping hasn't been to hard, I just place the pump next to me and it usually stays put. When I am alone in a quiet room, that hiss every 3 minutes as my basal rate is delivered is like a constant reminder that the pump is there and working away doing something my body should be able to do without any noise at all. I will have to say that being a perfectionist is probably not going to help me in this. I am going to want everything to go right, from intial basal rates, blood glucose numbers to every single site change. I will get over that slowly. I messed up tonight will loading the new cartridge and doing the new infusion set. I was so upset for no particular reason except that I like things to go right, and when they don't it seems like the end of the world (ANXIETY). Thankfully my mom was there and told me just to breathe, and I know over time it will become even more routine. Until then I'm still working out the kinks and finding what works for me. Now I just have to get to Friday, so I can start the real deal!
Monday, October 22, 2007
Day 8 - Plastic Pancreas

Today my mom and I went to our pump training session at my endocrinologist's office. If you had asked me even a year ago if I would consider an insulin pump, the answer would have been NO! Over the past few months I have realized that the pump would be the only true way for me to mimic what a normal pancreas should do. A pump is not the right therapy for everyone. An insulin pump is not a cure, it is only another delivery method. I will wear the pump for 4 days with saline, to get used to this new method. Then start on insulin this Friday. In the meantime I will still be taking multiple daily injections. I do not need this device because I have a "bad case of diabetes". I hope that I do not have to be on a pump for 11 years like I was on multiple daily injections. I hope a cure comes sooner. But until there is a cure this is what I will do.
There is no cure for Type 1 or Type 2 Diabetes.
Yet.
From Penny & Bernard, go write Ellen a letter suggesting she feature something about November being Diabetes Awareness Month and November 14th being World Diabetes Day on her show!
I can't write her because I am not 18, but I will ask my mom to do it for me!
Sunday, October 21, 2007
Day 7 - Message in a Bottle.
There is no cure for Type 1 or Type 2 Diabetes.
Yet.
10 AM Tomorrow, Pump Training and Saline Start!!!
Saturday, October 20, 2007
Day 6 - Waiting
I received my Cozmo Insulin Pump in the mail over 2 weeks ago. Unfortunately because my doctor's office didn't have any available appointments until this Monday, I have 2 boxes of pump supplies just waiting in my living room. I never thought I would be someone who wanted to be on a pump. Now that I feel that pumping is the right decision for me, I can't wait until my appointment Monday. An insulin pump is just one of the insulin delivery options a person with diabetes has. Pumping is not right for everyone, but at this point in time I feel it is right for me.
There is no cure for Type 1 or Type 2 Diabetes.
Yet.
Friday, October 19, 2007
Comments, Posts, and a Countdown!
So we are entering the final countdown to the saline start on Monday (2 days) and pump start on Friday (1 week). I'm stoked! I practiced wearing the pump to sleep the other night by clipping the cannula off of the infusion set, and attaching it with just the adhesive patch. I put an empty cartridge in the pump to connect the tubing to, and wha lah a little pump practice! It worked out just fine. I am the type of person that has to be informed and prepared before I go to the training. It helps me calm my nerves if I know enough before hand. A less anxious Jillian equals a better day for everyone.
My sister is home for the weekend for a little bonding/babysitting me while my parents are away celebrating their 27th wedding anniversary. So I'm sure it will be a good weekend, I love spending time with her. I may not see her again until Thanksgiving. So happy weekend everyone!